Resources & Stories

When I first found out about Pemphigus Vulgaris, I was lost.  Totally lost.   But the more I researched, the more I realized that there was lots of information out there.. Perhaps too much.  And, since there is techincally no known cure, the research continues to evolve and there are new findings with new treatments coming out all the time.

The purpose of this page is to provide resources to help better understand this disease as well real world stories of those of you who have been impacted by Pemphigus Vulgaris.

Organizations

1. International Pemphigus & Pemphigoid Foundation
2. Pemphigus  Vulgaris Network - UK

Research

1. Sirolimus for Acute Pemphigus Vulgaris: A case report and discussion of dualistic action providing for both immunosuppression and keratinocyte protection.

Videos

1. Pemphigus Vulgaris Treatment - Dr. Wendy Levinbook, MD discusses Pemphigus Vulgaris Treatment. See more at http://www.dermnet.com

Real Patient Stories

1. Siri Lowe - Her Journey...